May 11, 2008

More Stories on MedTrackAlert

I've been writing more stories for MedTrackAlert, and I'm really grateful for the work, especially now with my car repair bills (no, the Red Corvair isn't back home yet) and vet bills for poor GB (haven't seen a final bill yet--they are tactful about these things when a pet dies, but I'm guessing it's going to be up around $2,000).

Here are links to the latest three stories of mine that MedTrackAlert has published:

How to respond to hurtful comments

Get help with your bills from a specialist

Tips for sorting out medical bills

Here's the link to the first piece I wrote for them, back in April:

Story on MedTrackAlert: How to Talk to People With Cancer

MedTrackAlert
From their Web site:
MedTrackAlert is a consumer health information company dedicated to helping people better understand the benefits and risks of prescription medications.

We provide our members with important, time-sensitive news to keep them aware of new advances, adverse drug interactions, and potential dangers related to the medications they take. Our goal is to help you begin and maintain a fruitful collaboration with your doctors in the management of your health.

How It Works
We deliver news through our Web site and e-mail newsletters. Registration for our service is completely free and provides access to our full archive, health management and assessment tools, and free samples from drug manufacturers.

@ Jeanne Sather 2008.

May 03, 2008

Talking to the Press

John e-mailed me a couple of weeks ago, on the day he did an interview with a reporter from his local paper.

Here's what John said:

I met with the member of the paper today. He was not a day over 23 years of age.

He was totally unprepared. He used a cell phone for a tape recorder. I ran that out twice. I really had to highlight this. He had NOT seen my blog. I told him to go there. This would really explain a lot that he was missing. I kept wanting to stress education and early detection, he kept wanting to know if I was going to die or not.

How did that make me feel? Why did I feel that way? MMMMMMMMM Not sure, we shall see how this goes I guess. I had to tell him to remove the cap off the lens of the camera in order for him to take my picture.

I know, he is green and we all have to start somewhere. And I am grateful to have been offered this opportunity, BUT, I just am not sure the story will pan out in the way I wanted it to. We shall see.

I was a mainstream journalist (reporter and editor) for something like 15 years before I started writing about cancer, and I think John is being generous in his reaction to this young reporter. There is no excuse for being unprepared for an interview.

Here's my reply to John's e-mail:

John--I think you should post this e-mail on your blog, just as is.

I'm also going to forward it to the young writers I mentor--good for them to see. Not that any of them would go to an interview unprepared. There's no excuse for that.

It's not uncommon for the writer to have a different agenda for the story than the subject has--but "When are you going to die?" is getting pretty crude. Although I've gotten that too.

John did write a post about the story after it came out and was full of errors.

See: Setting the Story Straight

I've done a lot of interviews with the press, and so far I guess I've been lucky. Most of the stories have come out OK. A few little errors here and there, but generally the point of view of the stories has been OK with me.

Go to the About page on this blog and scroll down to read interviews that I've done with the media and also stories I've written about cancer for a mainstream audience--in some cases rather different from the way I write on my blog.

I've been getting a fair number of requests for interviews, especially in the past year, and I try to accommodate them all, especially from journalism students--because I was a J School student once, and I remember how hard it was to get folks to agree to interviews for stories that probably would not be published (because they were class assignments).

A week or so ago, a student from Columbia U.'s journalism graduate school contacted me and asked if she could interview me. I told her my week was really jammed--that was the week that my friend was here from San Francisco, plus Debutaunt and her daughter (and the debu__sweetie and HIS daughters) were coming to dinner, and I had two stories due, other than my blog.

So she gave me the "I only need 15 minutes of your time" line (which I've used myself), and I agreed-- 9 a.m. on the Saturday that Debs and Co. were coming to dinner. My S.F. friend and I were going out for brunch with another friend at 10, so I had literally 15 minutes I could give this graduate student.

What happens? She doesn't call. I waited till 9:15, and then I turned off the phone. She called after that and she e-mailed, and said that she had had problems with her recording equipment. She asked if we could set up another time.

I was annoyed and not inclined to accommodate her a second time, so I e-mailed her back and said that. I also pointed out that she could have called me as scheduled at 9 to tell me she was having a problem with her recorder. I hate waiting by the phone.

Full disclosure: I have a master's degree in journalism from UC Berkeley, a school that has a fierce rivalry with the school at Columbia.

Do you have a story about talking to the press? Please add a comment below--we want to hear about it. And add a link to the interview, if possible. Thanks.

@ Jeanne Sather 2008.

April 04, 2008

Story on MedTrackAlert: How to Talk to People With Cancer

A editor with MedTrackAlert found me through my blog and asked me to do some writing for them.

This is the first piece that's been published. It first went out in an e-mail newsletter and then was posted to the Web site.

Those of you who know me will recognize that what to say--and what not to say--when someone you know has cancer is a topic close to my heart. No writer's block with this piece!

How to talk to people with cancer

MedTrackAlert
From their Web site:
MedTrackAlert is a consumer health information company dedicated to helping people better understand the benefits and risks of prescription medications.

We provide our members with important, time-sensitive news to keep them aware of new advances, adverse drug interactions, and potential dangers related to the medications they take. Our goal is to help you begin and maintain a fruitful collaboration with your doctors in the management of your health.

How It Works
We deliver news through our Web site and e-mail newsletters. Registration for our service is completely free and provides access to our full archive, health management and assessment tools, and free samples from drug manufacturers.

@ Jeanne Sather 2008.

March 25, 2008

Great 'My Turn' in Newsweek

The March 24, 2008 issue of Newsweek has a great "My Turn" piece about the power of the Web to help someone with cancer.

"My Turn" is written by Newsweek readers, and it's a feature I almost always read. (I've also pitched "My Turn" pieces unsuccessfully a couple of times over the years, but that's another post for another day.)

In "An Electronic Cure for Despair," Rich Thomas writes about the e-mails that raised his wife's spirits--and probably prolonged her life--when she was battling cancer, in the hospital, and in pain.

If you don't get the print edition of Newsweek, here's the link to the story online:

An Electronic Cure for Despair

March 20, 2008

Where Did All Those Readers Come From?

The Typepad stat counter shows that my blog has gotten 911 page views in the past 24 hours.

My daily average is 518 page views, so where did all those readers come from?

Usually when I get a spike like this, it's because someone else has written a story about me with a link to my blog, or I have a story in another publication, like the recent piece I did for Crosscut. The day that story appeared, I had 601 page views, so just a small spike.

The last time I had more than 900 page views in one day was December 11. Back then, I was writing about surviving the holidays and recycling unneeded drugs through drug repositories.

I checked my stats and referrers, but there's no one referrer sending all these folks to my blog today.

It's a mystery.

@ Jeanne Sather 2008.

December 09, 2007

One Profound Sentence

As I mentioned in my earlier post, I've been editing student papers this week.

I teach a class in nonfiction writing at the University of Washington Extension, and I really love it, although I had to make the tough decision to not teach winter quarter this year: The class is three hours long, on Tuesday nights, and it tires me out too much.

In any case, I'm finishing up the fall quarter, and editing my students' papers, which include a 750-word interview piece and a 1,000-word first-person piece.

As I was editing one of those, written by a student who suffered a brain injury more than 15 years ago after being struck in the head with a rock. The piece is excellent, and there is one perfect, profound sentence that I wanted to share:

I suppose everyone has some event that’s so central to their story that other things are ordered either before or after.

That's certainly true for me. Everything in my life is either BC (Before Cancer) or AC (After Cancer). I don't think I'm unusual in that.

Thanks, Susan.

October 01, 2007

While I Have Your Attention: Looking for a Book Deal

While I have all this media attention, for 15 minutes, anyway, I want to put the word out that I am looking for a book publisher.

The book is an in-your-face handbook on surviving with cancer, a companion to this blog, "The Assertive Cancer Patient: Living with cancer—and an attitude." Heavy on attitude and humor, but also full of useful strategies for negotiating the cancer world, which is a world like no other.

The Assertive Cancer Patient Handbook

Chapters include:

How to Marry a Canadian
The ad that started it all:
CancerMatch.com?

The rest of the posts:
Dating

How to Avoid Medical Mistakes (the hottest topic on my blog, most weeks)
Medical Mistakes

How to Keep From Going Insane in October, Whether You Have Breast Cancer or Not
Boycott October

How to Handle Medical Billing and Health Insurance Woes, Complete With Sample Letters That Get Results
Medical Billing/Insurance Woes

A Sample Letter:
15 Phone Calls

How to Spot a Quack (And How to Resist Those "Treatment" Offers That Sound Too Good to Be True)
Quacks

And more. About 10 chapters, I imagine.

If you are an interested publisher, please e-mail me and I will give you my agent's contact information.

Jeanne

September 07, 2007

Writing Students Wanted

I'm teaching a class in nonfiction writing at the University of Washington Extension here in Seattle fall quarter.

The 10-week class is geared toward adult students who would like to become freelance writers, and starts October 2. It meets once a week for three hours on Tuesday evenings. The class is part of a three-quarter series that leads to a certificate in nonfiction writing. (You can take just one class, or continue on and take all three. I teach winter quarter as well, but not spring.) Certificate programs are non-credit, and also not graded, something I like about teaching in the program.

For more information about the class, go to the Extension Web site, or send me an e-mail: jeanne.sather@gmail.com

That class is expensive, about $500 for the quarter. If you have metastatic cancer and would like to take a free writing class with me, contact Cancer Lifeline.

I'm actually teaching two workshops at Cancer Lifeline this fall.

The first is a two-hour workshop on cancer and blogging. I'll talk about all the different reasons people blog and the joys of blogging, and introduce some blogs that folks might want to be reading. During the second hour, I will be walking participants step-by-step through the process of setting up a blog. The workshop is October 6, a Saturday, from noon to 2 p.m.

Then, starting Saturday, October 13, I will be teaching a six-week writing workshop that is only for people with metastatic cancer. Some of these participants may decide to launch blogs, but we’ll be doing other kinds of writing as well.

To sign up for either workshop, contact Cancer Lifeline.

@ Jeanne Sather 2007.

August 16, 2007

More on Copyright, Blogging, and 'Pink Ribbons Inc.'

In my earlier post about the book Pink Ribbons Inc., I questioned why the copyright was held by the university that published it and not by the author, Samantha King.

King, an associate professor of physical and health education and women’s studies at Queen’s University in Ontario, Canada, confirmed in an e-mail that the book was originally written as her Ph.D. dissertation.

Before I received that e-mail, The Cheeky Librarian weighed in, and said she thought that giving up the copyright was standard practice with university presses. (King's book was published by the University of Minnesota.)

The Cheeky Librarian is a medical librarian with a university. She says, "I know that if I create something while working at the university, such as the video that we did in the library (it has been sent around the country, by the way, as well as on the Web--we are thrilled!), the university medical center holds the copyright. Maybe this author wrote her book as a work project? Maybe the author gave the copyright to the regents as a gesture? (Maybe they explain it in their foreword?) I know I have some university press books in this book-filled house, but can't lay my hands on any of them at the moment to see who holds copyright."

She then sent me a whole bunch of links to more info. on copyright, which I will put at the bottom of this post.

In her e-mail, King says, "University of Minnesota holds the copyright because (so far as I know) that's standard practice for academic books. I went with them because they promised to market it as a trade book so that it would reach a wider audience, and because I really liked the editor I was going to be working with."

I had also e-mailed the National Writers Union, a strong advocate for authors’ rights.

Here's the reply I received from Ken Wachsberger, 2nd vice president, external organizing, of NWU:

Jeanne, you're right that the intellectual property should belong to the author.

That certainly is the position of the National Writers Union. Unfortunately, many academics are so addicted to the "publish or perish" mentality that they throw away what is theirs without raising objections. In fact, many academics don't even realize they have a right to negotiate; they just sign the boilerplate contract that arrives in the mail.

In the National Writers Union, one of our missions, through our Grievance and Contract Division, is to educate not just academics but all writers, in all genres, about their rights as published authors and also work-for-hire writers (business, tech, and education authors, for instance, don't generally retain copyright but what they receive in compensation they deem worth the trade). We offer free contract advising as a member benefit and often give workshops on campuses. If you are interested in having a workshop come to your nearby campus, feel free to contact me and I will help you set one up; we usually do them in partnership with the campus teachers union.

I think I'll take Ken up on his offer and ask to have someone from NWU visit my writing class at the University of Washington Extension in the fall. Most of the adult students who take the class want to become freelance writers, and it is freelancers who have the least power when it comes to contracts and copyright.

As The Cheeky Librarian said, it is true that work you create as an employee generally belongs to your employer. This is true for written work and also for scientific discoveries of all kinds. The stories I wrote when I was employed by publications such as Newsweek are copyrighted by the publication, not by me.

When I wrote my column for MSN's Encarta channel, "Smart Parenting," I signed a work-for-hire agreement that gave the copyright to MSN. I wasn't happy about it, but I felt the pay and the exposure were worth it. However, I own stories I write as a freelancer, and this blog, as well.

Copyright on the Web is a real problem. Almost every week, I find that someone has violated my copyright by using something from my blog or my other published work without my permission.

Sometimes this is out of ignorance. A lot of people are writing and publishing on the Web who never went to journalism school or worked at a mainstream publication, so they don't know the rules.

But more often it is someone trying to fill up their Web site or blog with text that they have no right to use. When I find one of these, I send an e-mail asking them to take it down. That usually works, although I've found my writing on foreign-language sites coming out of China and other countries that did not respond to my requests to honor my copyright.

If You Want to Quote Me
Just for the record, if you want to refer to something I've written, the correct way to do it is to write a paragraph summarizing the content of the post and then link to it. You can also quote something I've written--again, about a paragraph or two is considered fair use, and then link to my original post.

I appreciate it when people send me an e-mail telling me that they are linking to my blog, but you don't have to do this. It shows up on my stats on Technorati anyway.

Another area of concern for me, now that I have photos on my blog, is people swiping my photos and using them without my permission. I've checked in with several people asking how to prevent this, and I'll write about that soon.

And Then There's Google
I've had a love-hate relationship with Google for years. (Love the search engine, hate how the company does business. Go to Running With Fear, a story I wrote for Seattle Weekly as a freelancer in 2003, and scroll to the bottom. You are looking for the subhead: SOAPBOX NO. 3: PRESSURE GOOGLE.)

From the NWU Web site:
Google and other giant software companies are trying to convince the public--and that includes students, professors, and librarians (our traditional allies)--that information on the Internet should be free and instantly accessible, and that copyright protection written into the U.S. Constitution is a hindrance to the free flow of information.

Argh.

Here's the link to the full article:
The Imperiled Future of Copyright

Want to Read More?
From The Cheeky Librarian:
Here is a 2003 article on FirstMonday on Copyright and Authors

One of my favorite blogs, BoingBoing, often has posts on
copyright and DRM.

Slashdot is another site that often discusses current and impending copyright law.

American Library Association keeps us up on copyright.

As does my Medical Library Association.

And great universities are starting their own copyright centers, just to help their academics and students keep track of the maze. See Stanford.

Intellectual property is a big deal, and needs to be paid attention to!


[Food Note: As I write this I am drinking a smoothie made with organic milk, real yoghurt, a banana, and strawberries harvested from my garden in June and frozen. Yum. Now that I'm off chemo I have an appetite again--How long has it been?--and I'm gaining weight, not a good thing, but I love getting really hungry.]

@ Jeanne Sather 2007.

August 14, 2007

Pink Ribbons Inc.—Breast Cancer and the Politics of Philanthropy

I’m glad I saved this book for the beach: in three days, I've read only 68 pages. Although the book is fascinating, it is heavy going.

In fact, it reads like a Ph.D. dissertation, which I suspect it was. When I get back to civilization and have Internet access again, I plan to e-mail the author, Samantha King, an associate professor of physical and health education and women’s studies at Queen’s University in Ontario, Canada, and ask her.

I’m also wondering why the copyright on the book is held by the regents of the University of Minnesota, rather than by the author, whose intellectual property it is.

Is this a new trend in Ph.D. dissertations? That a grad student does what is arguably the most important piece of work of his or her academic career and the results belong to the university that granted the degree? Interesting.

I plan to ask the author and the university about this. Also the National Writers Union, a strong advocate for authors’ rights.


A side note: As I write this, the view out my window is water, sand, and beach grass. Nothing more.

The dogs are both sleeping soundly, exhausted after six days of running on the beach, chasing balls (Connie) and the shadows of birds (GB). Younger Son is plowing through the Iliad, required reading before college starts in late September.

(Back in Seattle to post this. E-mail and phone contact are restored, a mixed blessing.)

@ Jeanne Sather 2007.

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