May 11, 2008

More Stories on MedTrackAlert

I've been writing more stories for MedTrackAlert, and I'm really grateful for the work, especially now with my car repair bills (no, the Red Corvair isn't back home yet) and vet bills for poor GB (haven't seen a final bill yet--they are tactful about these things when a pet dies, but I'm guessing it's going to be up around $2,000).

Here are links to the latest three stories of mine that MedTrackAlert has published:

How to respond to hurtful comments

Get help with your bills from a specialist

Tips for sorting out medical bills

Here's the link to the first piece I wrote for them, back in April:

Story on MedTrackAlert: How to Talk to People With Cancer

MedTrackAlert
From their Web site:
MedTrackAlert is a consumer health information company dedicated to helping people better understand the benefits and risks of prescription medications.

We provide our members with important, time-sensitive news to keep them aware of new advances, adverse drug interactions, and potential dangers related to the medications they take. Our goal is to help you begin and maintain a fruitful collaboration with your doctors in the management of your health.

How It Works
We deliver news through our Web site and e-mail newsletters. Registration for our service is completely free and provides access to our full archive, health management and assessment tools, and free samples from drug manufacturers.

@ Jeanne Sather 2008.

April 18, 2008

Another E-mail From Anna

Anna wrote back just now, and she said something that I just have to post.

She was praising my blog, and she said, "You are not a competitive complainer."

In other words, she can tell me what's going on with her, and I don't have the need to top her with a worse cancer story about myself.

I'm posting this not because she is praising my blog, but because I love the words she used. I've never heard that expression (I think she invented it), and I love it. She was also referring to support groups, and how this sometimes happens.

We cancer patients don't need to compete with each other. We are all in this leaky lifeboat together.

@ Jeanne Sather 2008.

April 04, 2008

Story on MedTrackAlert: How to Talk to People With Cancer

A editor with MedTrackAlert found me through my blog and asked me to do some writing for them.

This is the first piece that's been published. It first went out in an e-mail newsletter and then was posted to the Web site.

Those of you who know me will recognize that what to say--and what not to say--when someone you know has cancer is a topic close to my heart. No writer's block with this piece!

How to talk to people with cancer

MedTrackAlert
From their Web site:
MedTrackAlert is a consumer health information company dedicated to helping people better understand the benefits and risks of prescription medications.

We provide our members with important, time-sensitive news to keep them aware of new advances, adverse drug interactions, and potential dangers related to the medications they take. Our goal is to help you begin and maintain a fruitful collaboration with your doctors in the management of your health.

How It Works
We deliver news through our Web site and e-mail newsletters. Registration for our service is completely free and provides access to our full archive, health management and assessment tools, and free samples from drug manufacturers.

@ Jeanne Sather 2008.

December 11, 2007

Great Quotes From Cancerland

"...chemo has turned me into a potted plant."
--Liz, As the Tumor Turns, The Missing Weeks, Part 2

"Cancer patients such as myself consider applying for health insurance a sporting event."
--Jimbo, Jet City Jimbo

"I just want clean margins! Why can't anything in my life have clean margins?"
--Sara, Moving Right Along, in response to my post, Winning and Losing


"She would very much like to have a break from trips to anyone's infusion room."
--Dr. Robert Livingston, in chart note RE Jeanne Sather

The door back into my old life is closed, forever.
--Gudrun Kemper, Health and Happiness

If you poison the environment, the environment will poison you.
--Tony Follari


(More to come)

July 09, 2007

Great Quotes From Cancerland

"...chemo has turned me into a potted plant."
--Liz, As the Tumor Turns, The Missing Weeks, Part 2

"Cancer patients such as myself consider applying for health insurance a sporting event."
--Jimbo, Jet City Jimbo

"I just want clean margins! Why can't anything in my life have clean margins?"
--Sara, Moving Right Along, in response to my post, Winning and Losing


"She would very much like to have a break from trips to anyone's infusion room."
--Dr. Robert Livingston, in chart note RE Jeanne Sather

The door back into my old life is closed, forever.
--Gudrun Kemper, Health and Happiness

(More to come)

June 06, 2007

Great Quotes From Cancerland

"...chemo has turned me into a potted plant."
--Liz, As the Tumor Turns, The Missing Weeks, Part 2

"Cancer patients such as myself consider applying for health insurance a sporting event."
--Jimbo, Jet City Jimbo

"I just want clean margins! Why can't anything in my life have clean margins?"
--Sara, Moving Right Along, in response to my post, Winning and Losing


"She would very much like to have a break from trips to anyone's infusion room."
--Dr. Robert Livingston, in chart note RE Jeanne Sather


(More to come)

June 03, 2007

Need a Snappy Comeback? Try Out One of These

A couple of things became very clear after last week's post asking for snappy comebacks: One, Teri, the Cheeky Librarian, and I are not alone in our quest for the perfect snappy comeback when a stranger asks an intrusive question. And two, we are under no obligation to tell the truth just because someone asks.

The second point opens up all sorts of possibilities. And really, what obligation do I have to answer truthfully when I'm asked a question that I don't want to answer in the first place, and that I may find upsetting or simply an invasion of my privacy?

Freedom.

All sorts of folks suggested all sorts of snappy comebacks. Here are some samples. Feel free to borrow them:

1. My friend Jill has metastatic breast cancer and often wears a sleeve or wraps her arm because of lymphedema. She says she just answers "yes" to whatever someone asks.

Stranger: “Did you break your arm?” Jill: “YES.”

Stranger: “Did you burn yourself?” Jill: “YES.”

Stranger: “Did someone hit you?” Jill: “YES.”

Jill explains: “If I agree, it doesn't invite more conversation on a subject I'm tired of talking about.”

2. What happened to your arm/leg/head/whatever?

Answer: Why do you want to know?

3. What happened to your leg?

Answer 1: "Which one?"

Answer 2: "Which time?"

4. What happened to your arm?

Answer 1: I was in a knife fight. You should see the other gal.

Answer 2: Shark bite.

I'm psyched now. Can't wait for someone to say something stupid to me. Of course, now that I'm prepared with several good comebacks, it will never happen. Why is that?

@ Jeanne Sather 2007.

May 29, 2007

Snappy Comebacks Wanted

There is nothing worse for us writers than to be caught flat-footed with nothing to say.

My friend Teri, the Cheeky Librarian, and I have been having some exchanges about snappy comebacks—you know, the perfect words to say in response to outrageous comments, usually from total strangers.

It’s happened to all of us, and not just about cancer.

Mommy and Me
Older Son is adopted, and since he is Japanese and I am a Northern European blend (German, Norwegian, French, Irish, English, and Scottish, since you asked), it’s pretty clear to the least-observant passerby that we are not blood relatives. But it’s also pretty clear that I am his mom, not the nanny.

When we lived in Japan, strangers, including young schoolgirls, assumed that my son was half-Japanese, since my then-husband was Japanese. As a result, they called my son a gaijin--a not-very-friendly word for “foreigner” and fussed over him like the baby panda in the zoo.

One afternoon I will never forget: Older Son, then 3, and I were in Hiroshima’s Peace Park with some friends, when a group of uniformed middle-school girls on a field trip surrounded my son, shrieking “kawaii, kawaii,” (“cute, cute”) as though they had encountered the aforementioned baby panda there in the park.

Since he was clearly enjoying the attention, I did not interfere, but I’ve always wondered what would have happened if I had marched up to the girls and said, “This child is 100 percent Japanese. Why are you making such a fuss over him?”

One reason I didn’t is that the snappy comeback doesn’t work very well in Japan, especially when uttered in Japanese by a blonde gaijin. Never has, never will.

Back to America
I divorced my Japanese husband and came home to the United States when Older Son was 4, and I was shocked and dismayed by the things people asked me about my son—total strangers, in public, in front of my child. (I thought, from the perspective of Tokyo, that people in the U.S. would be so much more liberal and accepting of our mixed-race family. Nope. Not so.)

Finally, I wrote a piece for the Seattle Post-Intelligencer, and writing that piece helped me come up with a few snappy comebacks. It also, I hope, helped educate well-meaning but somewhat-insensitive people about what kinds of comments are OK.

For example, “Why did his mother give him up?” is NOT OK.

Nor is, “He looks just like a China doll.” (Mothers of adopted Asian girls get this one much more often, as do Asian mothers of little girls, from whites who think this is a compliment.)

As Older Son grew, the comments stopped, for the most part. And I suppose this experience helped prepare me to some degree for the outrageous things people say—and ask—when you have cancer.

The Masked Librarian
Teri, The Cheeky Librarian, has written on her blog about the mask she wears to protect herself from sun exposure. I e-mailed and asked her how she handles the weird looks she gets when she goes out looking like Darth Vadar.

Here’s part of her reply:

Well, the only time I have had a really bad episode of someone staring at me and making a potentially rude comment was this week ON MY CAMPUS.

I will send a message to the faculty member in charge of professionalism, offering to speak to the group of students and let them know "What's up with THAT?!" probably shouldn't be the first statement out of their mouths when seeing anyone looking a bit different on our medical center campus. (I had to rush to give a tour in the library, or I would have used the time to educate the little bugger on just what IS up with me, and how it is a miracle that I am still walking around in public.)

I am working this episode up for adding it to the blog, and including links to sites that offer comebacks, if I can find any.

I dealt with the stares last summer (when I had the white burn cream all over my face) by just looking the folks straight in the eye and smiling, if they stared long enough. I guess it helps that I have been a “booth babe” in a hundred exhibit halls, and have gotten paid to get folks to look my way--who knows. (I exhibited at medical conferences and trade shows, and still exhibit, for information resources. Used to do it for the National Library of Medicine, now do it for our library.)

Rick heard a guy say something about “You'd think they would wash the cold cream off before leaving home” to his female companion, and he just spoke directly to him that it was burn cream. I could send Rick over your way, if you need someone 6'4" and about 300 pounds to be your spokesperson, too! It helps that he is former military--gets their attention.

Read the entire post:
Still learning how to cope with the after-effects of cancer treatment

Personally, I think the straight-in-the-eye-and-smile approach works well. Most people snap to when you do that. Sometimes I add "Excuuuuuse me?" to the eye contact.

My friend Jill, also a cancer blogger, has lymphedema, and when it acts up, or when she’s flying, she bandages her arm with puffy brown bandages from fingertips to elbow.

“When I look like this,” she says, “I seem to get more questions about what I've done to myself. Sometimes I explain the whole thing. More often than not, my response is to simply agree with whatever the questioner thinks has happened.”

So:

Stranger: “Did you break your arm?” Jill: “YES.”

Stranger: “Did you burn yourself?” Jill: “YES.”

Stranger: “Did someone hit you?” Jill: “YES.”

Jill explains: “If I agree, it doesn't invite more conversation on a subject I'm tired of talking about.”

I love this strategy. Can't wait to try it.

So Cheeky Librarian and I are both looking for snappy comebacks. Please send us your contributions. We could all use a cheat sheet of comebacks to deflect these remarks before they ruin a perfectly good day. In fact, I plan to write the best ones on my arm in waterproof ink.


@ Jeanne Sather 2007.


March 12, 2007

Questions NOT to Ask: How Long Have You Got?

Even worse, "What's the prognosis?"

If you know someone with cancer, or another serious illness, you need to tred carefully when asking questions about their illness.

And "How long have you got?" is just about the worst thing you can ask.

Having said that, it's important to remember that no one knows how long we will live.

See this story in yesterday's Seattle Times for confirmation of that fact.

Survivors: Told their time was up, they're refusing to lie down

February 19, 2007

Field Trip No. 1: To Buy a Hallmark “Cancer Card”

The next time you’re browsing the card racks looking for just the right card to commemorate Auntie Mabel’s fourth divorce, take a look at the latest “Hallmark moments”—cards to send to friends undergoing chemotherapy, or struggling with depression or bulimia.

Can you imagine? “Congratulations on your cancer diagnosis!”

Actually, the cancer card says—note the rhyming verse— Cancer is a villain who doesn't play fair ... but it can't dim your spirit, and it can't silence prayer."

Ugh. Friends and relatives, take note, DO NOT send me this or any other Hallmark cancer card.

Hallmark has been a cultural icon of schmaltz for decades with its rhyming sentiments and ribbons-and-flowers view of life’s important moments.

I give Hallmark Brownie points for trying.

But with all due respect to the hordes of people who were clamoring for printed cards to send to friends or relatives who had been diagnosed with cancer, or who were dealing with depression or bulimia—this is the time for a blank card or a plain sheet of notepaper, one on which you write your very own words, by hand, from the heart.

February 24, 2007 Update

NPR did a short, uncritical piece called A Hallmark Moment. Is NPR slipping?

Feb. 18-24 Is National Blank Greeting Card Week.


Support this blog


@ Jeanne Sather 2007.

Blog powered by TypePad
My Photo

google search