April 29, 2008

The Patient From Hell

The full title is: "The Patient from Hell: How I Worked with My Doctors to Get the Best of Modern Medicine and How You Can Too."

A friend e-mailed, asking me what I thought of the book, because she didn't like it much.

I haven't read it yet, although I've heard of it, so I'm wondering:

Have you read this book, and, if so, what did you think of it?

Please add a comment below.

I'll be reading it myself, once I get through the stack of books on my coffee table, which include: "Face Food," "The Seattle Bungalow," "Vegetable Soups," and "A Lifetime of Secrets."

Buy the book:

The Patient From Hell

August 18, 2007

Pink Ribbons Inc.: A Different Kind of Book Review

I’m plowing through Samantha King’s 2006 book, Pink Ribbons Inc.—Breast Cancer and the Politics of Philanthropy, writing notes, questions, and comments on almost every page.

I’ve also dog-eared at least half the pages in the book, and filled the endpapers with my own thoughts and notes for future blog posts. Guess I’ll have to buy another copy to have King sign for me when I meet her, which I hope to do.

It is comforting to me that an academic, in a heavily researched volume, came to many of the same conclusions that I have come to during the years that I’ve lived with breast cancer. I reached these conclusions mostly through my emotional responses to the same topics that King writes about from the academic’s perspective—pink ribbons, cause marketing, the exploitation of middle-class women with breast cancer, and more.

It’s comforting to me to see my emotional and logical responses to these issues backed up by facts and careful research. Thanks, Samantha.

I also didn’t realize, until about a year ago, that San Francisco-based Breast Cancer Action has been on the same page for years. Guess I was too busy with my own cancer experience to be more than vaguely aware of the work of this group until last year when one of their staff contacted me in response to my Boycott October posts.

Now, having read what King has to say about the work of BCA, I plan to offer my services to the group and I’ve sent off an e-mail (no response yet).

The above is my reaction to the book, but I want to leave you with more.

Read:
Words to Think About


Buy the book:
Pink Ribbons Inc.

@ Jeanne Sather 2007.

Words to Think About, from Pink Ribbons Inc.

The passages below are all from Samantha King’s book, ones I marked for further thought.

Komen’s role:
“Nancy Brinker, founder of the Susan G. Komen Breast Cancer Foundation, … is widely credited with turning the disease into a marketable product with which consumers, corporations, and politicians are eager to associate.

The “on-going cultural transformation of breast cancer in the United States since the early 1990s”:
“…[B]reast cancer has been reconfigured from a stigmatized disease and individual tragedy best dealt with privately and in isolation, to a neglected epidemic worthy of public debate and political organizing, to an enriching and affirming experience during which women with breast cancer are rarely ‘patients’ and mostly ‘survivors.’”

Ugh. I’ve seen plenty of evidence of this “enriching and affirming” response to a cancer diagnosis, and it makes me gag. People tell me, “Cancer was the best thing that ever happened to me,” and I want to say, “You’re kidding, right?”

Cause marketing:
“The current preoccupation with consumer-oriented philanthropic solutions to social problems.

Also:
“…consumerism has come to be recognized as a form of political action.”

Breast cancer receives more NCI funding than any other cancer. However:
“…the extent to which this high level of funding has positively affected breast cancer incidence and mortality rates remains to be seen. …a woman’s lifetime risk of breast cancer has increased from 1 in 22 in the 1940s to 1 in 7 in 2004.

Pink ribbon merchandise:
“…a particularly prominent manifestation of the tight alliances that have formed between large breast cancer foundations and corporations, of the insidiously gendered nature of cause-related marketing that helps reproduce associations between women and shopping and of a more general tendency to deploy consumption as a major avenue of political participation.

In other words, pink ribbon marketing plays into “retail therapy,” a serious problem among upper-middle class women in this country. Reduced to simplest terms, retail therapy means, “Buy something to make you feel better about yourself or your life.”

Don’t buy pink merchandise, but you may want to buy this book:

Pink Ribbons Inc.

@ Jeanne Sather 2007.

August 16, 2007

More on Copyright, Blogging, and 'Pink Ribbons Inc.'

In my earlier post about the book Pink Ribbons Inc., I questioned why the copyright was held by the university that published it and not by the author, Samantha King.

King, an associate professor of physical and health education and women’s studies at Queen’s University in Ontario, Canada, confirmed in an e-mail that the book was originally written as her Ph.D. dissertation.

Before I received that e-mail, The Cheeky Librarian weighed in, and said she thought that giving up the copyright was standard practice with university presses. (King's book was published by the University of Minnesota.)

The Cheeky Librarian is a medical librarian with a university. She says, "I know that if I create something while working at the university, such as the video that we did in the library (it has been sent around the country, by the way, as well as on the Web--we are thrilled!), the university medical center holds the copyright. Maybe this author wrote her book as a work project? Maybe the author gave the copyright to the regents as a gesture? (Maybe they explain it in their foreword?) I know I have some university press books in this book-filled house, but can't lay my hands on any of them at the moment to see who holds copyright."

She then sent me a whole bunch of links to more info. on copyright, which I will put at the bottom of this post.

In her e-mail, King says, "University of Minnesota holds the copyright because (so far as I know) that's standard practice for academic books. I went with them because they promised to market it as a trade book so that it would reach a wider audience, and because I really liked the editor I was going to be working with."

I had also e-mailed the National Writers Union, a strong advocate for authors’ rights.

Here's the reply I received from Ken Wachsberger, 2nd vice president, external organizing, of NWU:

Jeanne, you're right that the intellectual property should belong to the author.

That certainly is the position of the National Writers Union. Unfortunately, many academics are so addicted to the "publish or perish" mentality that they throw away what is theirs without raising objections. In fact, many academics don't even realize they have a right to negotiate; they just sign the boilerplate contract that arrives in the mail.

In the National Writers Union, one of our missions, through our Grievance and Contract Division, is to educate not just academics but all writers, in all genres, about their rights as published authors and also work-for-hire writers (business, tech, and education authors, for instance, don't generally retain copyright but what they receive in compensation they deem worth the trade). We offer free contract advising as a member benefit and often give workshops on campuses. If you are interested in having a workshop come to your nearby campus, feel free to contact me and I will help you set one up; we usually do them in partnership with the campus teachers union.

I think I'll take Ken up on his offer and ask to have someone from NWU visit my writing class at the University of Washington Extension in the fall. Most of the adult students who take the class want to become freelance writers, and it is freelancers who have the least power when it comes to contracts and copyright.

As The Cheeky Librarian said, it is true that work you create as an employee generally belongs to your employer. This is true for written work and also for scientific discoveries of all kinds. The stories I wrote when I was employed by publications such as Newsweek are copyrighted by the publication, not by me.

When I wrote my column for MSN's Encarta channel, "Smart Parenting," I signed a work-for-hire agreement that gave the copyright to MSN. I wasn't happy about it, but I felt the pay and the exposure were worth it. However, I own stories I write as a freelancer, and this blog, as well.

Copyright on the Web is a real problem. Almost every week, I find that someone has violated my copyright by using something from my blog or my other published work without my permission.

Sometimes this is out of ignorance. A lot of people are writing and publishing on the Web who never went to journalism school or worked at a mainstream publication, so they don't know the rules.

But more often it is someone trying to fill up their Web site or blog with text that they have no right to use. When I find one of these, I send an e-mail asking them to take it down. That usually works, although I've found my writing on foreign-language sites coming out of China and other countries that did not respond to my requests to honor my copyright.

If You Want to Quote Me
Just for the record, if you want to refer to something I've written, the correct way to do it is to write a paragraph summarizing the content of the post and then link to it. You can also quote something I've written--again, about a paragraph or two is considered fair use, and then link to my original post.

I appreciate it when people send me an e-mail telling me that they are linking to my blog, but you don't have to do this. It shows up on my stats on Technorati anyway.

Another area of concern for me, now that I have photos on my blog, is people swiping my photos and using them without my permission. I've checked in with several people asking how to prevent this, and I'll write about that soon.

And Then There's Google
I've had a love-hate relationship with Google for years. (Love the search engine, hate how the company does business. Go to Running With Fear, a story I wrote for Seattle Weekly as a freelancer in 2003, and scroll to the bottom. You are looking for the subhead: SOAPBOX NO. 3: PRESSURE GOOGLE.)

From the NWU Web site:
Google and other giant software companies are trying to convince the public--and that includes students, professors, and librarians (our traditional allies)--that information on the Internet should be free and instantly accessible, and that copyright protection written into the U.S. Constitution is a hindrance to the free flow of information.

Argh.

Here's the link to the full article:
The Imperiled Future of Copyright

Want to Read More?
From The Cheeky Librarian:
Here is a 2003 article on FirstMonday on Copyright and Authors

One of my favorite blogs, BoingBoing, often has posts on
copyright and DRM.

Slashdot is another site that often discusses current and impending copyright law.

American Library Association keeps us up on copyright.

As does my Medical Library Association.

And great universities are starting their own copyright centers, just to help their academics and students keep track of the maze. See Stanford.

Intellectual property is a big deal, and needs to be paid attention to!


[Food Note: As I write this I am drinking a smoothie made with organic milk, real yoghurt, a banana, and strawberries harvested from my garden in June and frozen. Yum. Now that I'm off chemo I have an appetite again--How long has it been?--and I'm gaining weight, not a good thing, but I love getting really hungry.]

@ Jeanne Sather 2007.

August 14, 2007

Pink Ribbons Inc.—Breast Cancer and the Politics of Philanthropy

I’m glad I saved this book for the beach: in three days, I've read only 68 pages. Although the book is fascinating, it is heavy going.

In fact, it reads like a Ph.D. dissertation, which I suspect it was. When I get back to civilization and have Internet access again, I plan to e-mail the author, Samantha King, an associate professor of physical and health education and women’s studies at Queen’s University in Ontario, Canada, and ask her.

I’m also wondering why the copyright on the book is held by the regents of the University of Minnesota, rather than by the author, whose intellectual property it is.

Is this a new trend in Ph.D. dissertations? That a grad student does what is arguably the most important piece of work of his or her academic career and the results belong to the university that granted the degree? Interesting.

I plan to ask the author and the university about this. Also the National Writers Union, a strong advocate for authors’ rights.


A side note: As I write this, the view out my window is water, sand, and beach grass. Nothing more.

The dogs are both sleeping soundly, exhausted after six days of running on the beach, chasing balls (Connie) and the shadows of birds (GB). Younger Son is plowing through the Iliad, required reading before college starts in late September.

(Back in Seattle to post this. E-mail and phone contact are restored, a mixed blessing.)

@ Jeanne Sather 2007.

Blog powered by TypePad
My Photo

google search